Thank you to everyone that 'checked out' the MS Awareness Week facts. Just because Awareness week is over, doesn't mean I will stop learning about MS and you shouldn't either! The MS Walks are beginning in areas across the US. You should check out a walk near you. This year is the first time we have a Walk MS event close by. I am actually helping plan the event and I would love to have you walk with us that day!
Kenzie had her surgery and seems to be doing fine. It hasn't helped her sleeping yet, but she has been fighting a cough since the surgery. Hopefully she can kick that soon. Yesterday, her trampoline was assembled and she got to jump. She has been waiting for this since Christmas! Thank you to two very special 'uncles' and her daddy for getting it up during nap time.
Kenzie has also enjoyed the warmer weather the last few days and got to play in her sandbox, have a BBQ with friends, swing and play with sidewalk chalk.
Mommy and Daddy have kept busy too. Mommy has been really busy at work as they are going electronic today! Eeek! Hopefully after this week, she won't be gone so much.
Take Care!
Monday, March 18, 2013
Saturday, March 16, 2013
MS Awareness Week
The National MS Society has a variety of resources for patients, their families and caregivers. Since being diagnosed, I have spent a lot of time on their website and requested several publications. One day when I was on the site, I saw a link to their connection groups. This sparked my interest, however, I noticed the only local group was held during the day in a neighboring town.
After some discussion with the Mid America Chapter of the MS Society, I decided to become a connection group leader! My first group was last night!
I am so glad that I have found another way I can reach out to those with MS and their families!
After some discussion with the Mid America Chapter of the MS Society, I decided to become a connection group leader! My first group was last night!
I am so glad that I have found another way I can reach out to those with MS and their families!
Friday, March 15, 2013
MS Awareness Week
There are several types of MS. Below is the type I have and the most common type.
Relapsing-Remitting MS (RRMS) — the most common disease course — is characterized by clearly defined attacks of worsening neurologic function. These attacks — which are called relapses, flare-ups, or exacerbations — are followed by partial or complete recovery periods (remissions), during which symptoms improve and there is no apparent worsening or progression of disease. Approximately 85% of people with MS are initially diagnosed with relapsing-remitting MS.
Relapsing-Remitting MS (RRMS) — the most common disease course — is characterized by clearly defined attacks of worsening neurologic function. These attacks — which are called relapses, flare-ups, or exacerbations — are followed by partial or complete recovery periods (remissions), during which symptoms improve and there is no apparent worsening or progression of disease. Approximately 85% of people with MS are initially diagnosed with relapsing-remitting MS.
Thursday, March 14, 2013
MS Awareness Week
In April of 2012, I noticed some tingling in my hands, mainly my right hand. It felt like it was falling asleep. It didn't go away. I did a couple tests to rural out carpel tunnel. Next, my physician, ordered me an MRI. This is where I first learned of the MS. It was then confirmed with a spinal tap and addittional speciality labs.
Below are some symptoms as recorded on the National MS Society website.
Most Common Symptoms
Some symptoms of MS are much more common than others.
Fatigue
Fatigue is one of the most common symptoms of MS, occurring in about 80% of people. Fatigue can significantly interfere with a person's ability to function at home and at work, and may be the most prominent symptom in a person who otherwise has minimal activity limitations.
Numbness
Numbness of the face, body, or extremities (arms and legs) is one of the most common symptoms of MS, and is often the first symptom experienced by those eventually diagnosed as having MS.
Walking (Gait), Balance, & Coordination Problems
Problems with gait (difficulty in walking) are among the most common mobility limitations in MS. Gait problems are related to several factors.
Bladder Dysfunction
Bladder dysfunction, which occurs in at least 80% of people with MS, usually can be managed quite successfully
Bowel Dysfunction
Constipation is a particular concern among people living with MS, as is loss of control of the bowels. Diarrhea and other problems of the stomach and bowels also can occur.
Vision Problems
A vision problem is the first symptom of MS for many people. The sudden onset of double vision, poor contrast, eye pain, or heavy blurring is frankly terrifying-and the knowledge that vision may be compromised can make people with MS anxious about the future.
Dizziness and Vertigo
Dizziness is a common symptom of MS. People with MS may feel off balance or lightheaded. Much less often, they have the sensation that they or their surroundings are spinning, a condition known as vertigo.
Sexual Dysfunction
Sexual problems are often experienced by people with MS, but they are very common in the general population as well. Sexual arousal begins in the central nervous system, as the brain sends messages to the sexual organs along nerves running through the spinal cord. If MS damages these nerve pathways, sexual response—including arousal and orgasm—can be directly affected. Sexual problems also stem from MS symptoms such as fatigue or spasticity, as well as from psychological factors relating to self-esteem and mood changes.
Pain
Pain syndromes are common in MS. In one study, 55% of people with MS had "clinically significant pain" at some time. Almost half were troubled by chronic pain.
Cognitive Dysfunction
Cognition refers to a range of high-level brain functions, including the ability to learn and remember information: organize, plan, and problem-solve; focus, maintain, and shift attention as necessary; understand and use language; accurately perceive the environment, and perform calculations. Cognitive changes are common in people with MS—approximately 50% of people with MS will develop problems with cognition.
Emotional Changes
Emotional changes are very common in MS—as a reaction to the stresses of living with a chronic, unpredictable illness and because of neurologic and immune changes caused by the disease. Bouts of severe depression (which is different from the healthy grieving that needs to occur in the face of losses and changes caused by MS), mood swings, irritability, and episodes of uncontrollable laughing and crying (called pseudobulbar affect) pose significant challenges for people with MS and their family members.
Depression
Depression is common during the course of multiple sclerosis. In fact, studies have suggested that clinical depression, the severest form of depression, is more frequent among people with MS than it is in the general population or in persons with other chronic, disabling conditions.
Spasticity
Spasticity refers to feelings of stiffness and a wide range of involuntary muscle spasms (sustained muscle contractions or sudden movements). It is one of the more common symptoms of MS. Spasticity may be as mild as the feeling of tightness of muscles or may be so severe as to produce painful, uncontrollable spasms of extremities, usually of the legs. Spasticity may also produce feelings of pain or tightness in and around joints, and can cause low back pain. Although spasticity can occur in any limb, it is much more common in the legs.
Less Common Symptoms
These symptoms also occur in MS, but much less frequently.
Speech Disorders
Speech and voice problems occur in approximately 25-40 percent of people with MS, particularly during relapses or periods of extreme fatigue. The problems are of two types—dysarthria refers to changes in the production of speech, including slurring, unclear articulation of words, and difficulty controlling loudness; dysphonia is the term used for changes in voice quality, including hoarseness, breathiness, nasality, poor control of pitch.
Swallowing Problems
Swallowing problems—referred to as dysphagia—result from damage to the nerves controlling the many small muscles in the mouth and throat. When dysphagia occurs, food and liquids can pass into the airway and lungs, causing the person to cough and choke. Because particles that remain in the lungs can cause aspiration pneumonia—a serious complication of MS—prompt evaluation and treatment by a speech/language pathologist are essential.
Headache
Although headache is not a common symptom of MS, some reports suggest that people with MS have an increased incidence of certain types of headache.
Hearing Loss
Hearing loss is an uncommon symptom of MS. About 6% of people who have MS complain of impaired hearing. In very rare cases, hearing loss has been reported as the first symptom of the disease. Deafness due to MS is exceedingly rare, and most acute episodes of hearing deficit caused by MS tend to improve.
Seizures
Seizures, which are the result of abnormal electrical discharges in an injured or scarred area of the brain, are fairly uncommon among people with MS. Their incidence has been estimated at 2% to 5%, compared to the estimated 3% incidence of seizures in the general population.
Tremor
Many people with MS experience some degree of tremor, or uncontrollable shaking. It can occur in various parts of the body.
Respiration / Breathing Problems
Respiration problems occur in people whose chest muscles have been severely weakened by damage to the nerves that control those muscles. Aspiration pneumonia (resulting from the food particles and/or liquids passing into the lungs) can also make breathing more difficult. Breathing problems, which can contribute to MS-related fatigue and interfere with speech and voice production, should be evaluated and treated by nurses or rehabilitation professionals with expertise in respiratory problems.
Itching
Pruritis (itching) may occur as a symptom of MS. It is one of the family of abnormal sensations—such as "pins and needles" and burning, stabbing, or tearing pains—which may be experienced by people with MS. These sensations are known as dysesthesias, and they are neurologic in origin.
Below are some symptoms as recorded on the National MS Society website.
Most Common Symptoms
Some symptoms of MS are much more common than others.
Fatigue
Fatigue is one of the most common symptoms of MS, occurring in about 80% of people. Fatigue can significantly interfere with a person's ability to function at home and at work, and may be the most prominent symptom in a person who otherwise has minimal activity limitations.
Numbness
Numbness of the face, body, or extremities (arms and legs) is one of the most common symptoms of MS, and is often the first symptom experienced by those eventually diagnosed as having MS.
Walking (Gait), Balance, & Coordination Problems
Problems with gait (difficulty in walking) are among the most common mobility limitations in MS. Gait problems are related to several factors.
Bladder Dysfunction
Bladder dysfunction, which occurs in at least 80% of people with MS, usually can be managed quite successfully
Bowel Dysfunction
Constipation is a particular concern among people living with MS, as is loss of control of the bowels. Diarrhea and other problems of the stomach and bowels also can occur.
Vision Problems
A vision problem is the first symptom of MS for many people. The sudden onset of double vision, poor contrast, eye pain, or heavy blurring is frankly terrifying-and the knowledge that vision may be compromised can make people with MS anxious about the future.
Dizziness and Vertigo
Dizziness is a common symptom of MS. People with MS may feel off balance or lightheaded. Much less often, they have the sensation that they or their surroundings are spinning, a condition known as vertigo.
Sexual Dysfunction
Sexual problems are often experienced by people with MS, but they are very common in the general population as well. Sexual arousal begins in the central nervous system, as the brain sends messages to the sexual organs along nerves running through the spinal cord. If MS damages these nerve pathways, sexual response—including arousal and orgasm—can be directly affected. Sexual problems also stem from MS symptoms such as fatigue or spasticity, as well as from psychological factors relating to self-esteem and mood changes.
Pain
Pain syndromes are common in MS. In one study, 55% of people with MS had "clinically significant pain" at some time. Almost half were troubled by chronic pain.
Cognitive Dysfunction
Cognition refers to a range of high-level brain functions, including the ability to learn and remember information: organize, plan, and problem-solve; focus, maintain, and shift attention as necessary; understand and use language; accurately perceive the environment, and perform calculations. Cognitive changes are common in people with MS—approximately 50% of people with MS will develop problems with cognition.
Emotional Changes
Emotional changes are very common in MS—as a reaction to the stresses of living with a chronic, unpredictable illness and because of neurologic and immune changes caused by the disease. Bouts of severe depression (which is different from the healthy grieving that needs to occur in the face of losses and changes caused by MS), mood swings, irritability, and episodes of uncontrollable laughing and crying (called pseudobulbar affect) pose significant challenges for people with MS and their family members.
Depression
Depression is common during the course of multiple sclerosis. In fact, studies have suggested that clinical depression, the severest form of depression, is more frequent among people with MS than it is in the general population or in persons with other chronic, disabling conditions.
Spasticity
Spasticity refers to feelings of stiffness and a wide range of involuntary muscle spasms (sustained muscle contractions or sudden movements). It is one of the more common symptoms of MS. Spasticity may be as mild as the feeling of tightness of muscles or may be so severe as to produce painful, uncontrollable spasms of extremities, usually of the legs. Spasticity may also produce feelings of pain or tightness in and around joints, and can cause low back pain. Although spasticity can occur in any limb, it is much more common in the legs.
Less Common Symptoms
These symptoms also occur in MS, but much less frequently.
Speech Disorders
Speech and voice problems occur in approximately 25-40 percent of people with MS, particularly during relapses or periods of extreme fatigue. The problems are of two types—dysarthria refers to changes in the production of speech, including slurring, unclear articulation of words, and difficulty controlling loudness; dysphonia is the term used for changes in voice quality, including hoarseness, breathiness, nasality, poor control of pitch.
Swallowing Problems
Swallowing problems—referred to as dysphagia—result from damage to the nerves controlling the many small muscles in the mouth and throat. When dysphagia occurs, food and liquids can pass into the airway and lungs, causing the person to cough and choke. Because particles that remain in the lungs can cause aspiration pneumonia—a serious complication of MS—prompt evaluation and treatment by a speech/language pathologist are essential.
Headache
Although headache is not a common symptom of MS, some reports suggest that people with MS have an increased incidence of certain types of headache.
Hearing Loss
Hearing loss is an uncommon symptom of MS. About 6% of people who have MS complain of impaired hearing. In very rare cases, hearing loss has been reported as the first symptom of the disease. Deafness due to MS is exceedingly rare, and most acute episodes of hearing deficit caused by MS tend to improve.
Seizures
Seizures, which are the result of abnormal electrical discharges in an injured or scarred area of the brain, are fairly uncommon among people with MS. Their incidence has been estimated at 2% to 5%, compared to the estimated 3% incidence of seizures in the general population.
Tremor
Many people with MS experience some degree of tremor, or uncontrollable shaking. It can occur in various parts of the body.
Respiration / Breathing Problems
Respiration problems occur in people whose chest muscles have been severely weakened by damage to the nerves that control those muscles. Aspiration pneumonia (resulting from the food particles and/or liquids passing into the lungs) can also make breathing more difficult. Breathing problems, which can contribute to MS-related fatigue and interfere with speech and voice production, should be evaluated and treated by nurses or rehabilitation professionals with expertise in respiratory problems.
Itching
Pruritis (itching) may occur as a symptom of MS. It is one of the family of abnormal sensations—such as "pins and needles" and burning, stabbing, or tearing pains—which may be experienced by people with MS. These sensations are known as dysesthesias, and they are neurologic in origin.
Wednesday, March 13, 2013
MS Awareness Week
Patterns in the Distribution of MS
- As in other autoimmune diseases, MS is significantly more common (at least 2-3 times) in women than men. This gender difference has stimulated important research initiatives looking at the role of hormones in MS. Read more on autoimmune diseases.
- MS is not directly inherited, but genetics play an important role in who gets the disease. While the risk of developing MS in the general population is 1/750, the risk rises to 1/40 in anyone who has a close relative (parent, sibling, child) with the disease. In families in which several people have been diagnosed with MS, the risk may be even higher. Even though identical twins share the same genetic makeup, the risk for an identical twin is only 1/4—which means that some factor(s) other than genetics are involved.
- While most people are diagnosed between the ages of 20 and 50, MS can appear in young children and teens as well as much older adults. Studying the disease in different age groups may help scientists determine the cause of MS and explain why the disease course differs from one person to another. Important questions include why the disease appears so early in some children and why people who are diagnosed after age 50 tend to have a more steadily progressive course that primarily affects their ability to walk.
- In all parts of the world, MS is more common at northern latitudes that are farther from the equator and less common in areas closer to the equator. Researchers are now investigating whether increased exposure to sunlight and the vitamin D it provides may have a protective effect on those living nearer the equator.
- MS occurs in most ethnic groups, including African-Americans, Asians and Hispanics/Latinos, but is more common in Caucasians of northern European ancestry. However some ethnic groups, such as the Inuit, Aborigines and Maoris, have few if any documented cases of MS regardless of where they live. These variations that occur even within geographic areas with the same climate suggest that geography, ethnicity, and other factors interact in some complex way.
Tuesday, March 12, 2013
Monday, March 11, 2013
MS Awareness Week
The average costs for someone with MS in the US is approximately $69,000. This includes both indirect and direct costs such as wage loss, etc. Of this $69,000, $39,000 consists of medical costs. Annually in the US, there is $28 billion dollars spent on people with MS.
For example, an injection for someone without insurance would cost approxiately $2200 a month. Also most, neurologist require an annual MRI and lab work.
For example, an injection for someone without insurance would cost approxiately $2200 a month. Also most, neurologist require an annual MRI and lab work.
Sunday, March 10, 2013
MS Awareness Week
March 10th-16th marks MS Awareness Week! Since my diagnosis in 2012, I have learned a lot about MS. This week I will be sharing with you a few facts about MS.
First Fact: What is MS?
Multiple sclerosis (or MS) is a chronic, often disabling disease that attacks the central nervous system (CNS), which is made up of the brain, spinal cord, and optic nerves. Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision. The progress, severity, and specific symptoms of MS are unpredictable and vary from one person to another. Today, new treatments and advances in research are giving new hope to people affected by the disease.
First Fact: What is MS?
Multiple sclerosis (or MS) is a chronic, often disabling disease that attacks the central nervous system (CNS), which is made up of the brain, spinal cord, and optic nerves. Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision. The progress, severity, and specific symptoms of MS are unpredictable and vary from one person to another. Today, new treatments and advances in research are giving new hope to people affected by the disease.
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